Parkinson’s Disease in Australia: Regional differences in quality of life

Overview

We are looking at whether people living in regional, rural and remote Australia differ from those living in metropolitan areas in things like quality of life and access to medical care. We will also look at regional differences in demographics, symptom progression and diagnosis, treatment use and preferences, and satisfaction with current standards of service provision. We are collecting this data using an online Qualtrics survey. Our research will be the first to provide quantitative data on the differences between rural, regional and metropolitan Parkinson’s patients across Australia.

Participant Details

Participant Criteria:

Inclusion:  

  • Aged 18 years or over
  • Has a diagnosis of Parkinson’s Disease (or care for someone with Parkinson’s disease)
  • Proficient in English
  • Able to provide informed consent
  • Are residents of Australia
  • Individuals who have access to a laptop or desktop or smartphone with a working Internet connection

Exclusion: 

  • Under 18 years of age
  • Participants who have no diagnosis of Parkinson’s disease (or are not carers of someone with Parkinson’s disease)
  • Unable to provide informed consent
  • People who do not live in Australia
  • Individuals without access to an Internet connection or computer / smartphone


Participant Involvement:

You will need is a working internet connection on either a computer or tablet. 

Clicking on the link below will take you to an anonymous online questionnaire hosted on the Qualtrics website. You will be able to read the full Participant Information Sheet before being asked to show your consent by clicking the “proceed” button.

You will then complete simple demographic questions including your age and gender. After this, you will proceed through a series of survey questions about your quality of life, access to services, when you were diagnosed, and so on. This should take about 25 minutes.


Participant Time Requirements:

25mins


Participation Information:

The following link will take you to the study:  http://bit.ly/QoLParkinsons

Study Information

Study Closure Date:

13-10-2021

Ethics Approval Number:

HE20-179

Researcher Details

Researcher Name: Alycia Messing
Researcher Email: amessin2@myune.edu.au

Researcher Name: Deborah Apthorp
Researcher Email: dapthorp@une.edu.au

Researcher Name: Megan Hobbs
Researcher Email: Megan.Hobbs@une.edu.au

Researcher Name: Frances Quirk
Researcher Email: frances.quirk@nhs.scot